Jordan is 22 days old today. I am
having kind of an emotional day today.
Sometimes I cannot help but think of how it doesn’t seem fair that
Jordan has to go through so much to be able to live in this world. These are definitely some of the hardest days
that we have ever endured. What is
amazing about all of this is that even when I feel sad and emotional, I don’t
feel burdened or overcome. I know this
is because we are placing the entire situation in God’s control instead of our
own. It really eases our struggle and worries
because we know that God is in control and will handle things. I do whole heartedly trust in God’s plan.
Jordan seemed really uncomfortable and fussy today. It really did break my heart. I know it must not be at all comfortable for
him to be on the ventilator and have doctors poking on him. I wish more than anything that I could hold
him and calm him. I want to be his
comforter. Since I have no power to do
that, I just pray that God would be his comforter and give him peace. God has been my comforter in this entire
situation and I know that God has been with Jordan as well. The miracles that He is doing in this little
boy’s life are outstanding. I guess
Jordan is allowed to have cranky days…I know I sure have those more than
necessary. Lord please give me patience
to wait on your timing.
The doctors will continue that steroid treatments to mature and develop
Jordan’s lungs and body. The side
effects of these treatments are low blood pressure and low sodium levels. The doctors have been doing an alternating
treatment where they give him the steroid, and then the next day they treat the
side effects. Then they repeat this
process again. They are also trying
different types of treatments to see what is best for Jordan. I really appreciate that his care is so
specific and that doctors really do consider every option. Today he was on the HFV. It kind of makes his body shake a little with
vibrations but this ventilator is better for his lungs than the conventional
ventilator. They are continuing to
switch ventilators as needed. Pray that
God would place his hands on Jordan’s lungs so that he may come off of the
ventilator on time. This should be in
about 3-4 weeks.
After we visited with Jordan we went to Tony Romas for lunch. It was so yummy and nice to just eat some
almost American type of food. We enjoyed
ourselves and Jason had a blast. On
Saturdays he gets to come up to the hospital with us. He is not allowed to go into NICU so we take
turns with him in the playroom while the other visits with Jordan. It will be wonderful when our two little boys
are able to meet each other for the first time.
That will be a big and monumental moment in our lives. Jason had a really great day with his
attitude. He has been very well behaved
today. This helps our energy levels out
greatly. Jason also makes us laugh
constantly. He was dancing and playing
air guitar all day today. We decided we
need to have a jam room someday so we can all be musical and loud whenever we
want.
Lord, I pray that you would give Jordan strength and peace today. Help him to relax and rest. Please continue to place your healing hands
upon him and guide his development. We
so badly want him to be able to live a long and healthy life and have the
ability to experience the wonderful things in your creation. We ask that you help him to gain weight and
help him to feel loved. Give us all
patience as we wait on your perfect timing.
Allow us the strength to fight this day to day battle with joy and
thanksgiving. Help us to give you the
glory and rely on you during emotional human times. We are not even near perfect and we need your
perfect grace every step of the way. Allow
us to be big testimonies to your power.
We ask that you would be with Jordan’s lungs and guide their development
so that he might be able to breathe on his own in time. Please be with Jason and help him to be the
curious and fun little boy that you created.
Give him a loving attitude and allow us patience as we parent. Help him to soak in the knowledge and example
of your word. Lord give me and Jacob
strength as we embark on this journey.
We have a long way to go and we need you more than ever at each moment
of every day. We know that you will
never leave us nor forsake us. You are
always there and always loving. Lord be
with the doctors and give them wisdom to select the correct treatment plans for
Jordan. Thank you for placing us in this
location so that Jordan could receive this care. Lord, lastly, give us rest. Help us to rely on you at each minute and
with each struggle. You are our great
supporter. Thank you for the blessings
you have given us. We ask all these
things in your name, Amen.
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