Today has been quite the emotional
day for us. Jordan is now 6 days old. We started off the day as normal. I received a phone call from one of the
medical doctors on base that has been checking up on us throughout the
experience. He told me that he
understood that Jordan was scheduled to have surgery in a few hours. We had not been to the NICU yet for the day
so I did not have this information. He
really freaked me out. The last update
we had been given was that they were going to be doing a fourth IND treatment
because his condition was so stable.
Jacob arrived and I told him about the phone call and then we went to
the NICU to discuss with the doctor. We
arrived in the NICU and it immediately felt different because a translator had come
up from the base to work with us. The
doctors had called the translator and had told us that they were waiting on
them to get there. Our hearts were
beating very fast in our chests as we were wondering what was up. The doctor told us that the fourth IND
treatment had been ineffective. Because
of this, they were going to just assume that his body would not react to that
form of treatment. Instead they would do
surgery. My six day old baby was going
to have open heart surgery in a few hours.
I of course was very shaken by this news. I was immediately emotional and sobbing. The doctor assured us that his condition was
very stable and they believed that he could handle the surgery.
We were able to meet with the
surgeon, the anesthesiologist, and the infant doctor. The surgeon told us the specifics about the
surgery. He would be cut from under his
nipple to his back and would be opened up between the ribs. The surgeon would then attach a metal clip to
the valve in his heart to close the PDA.
We asked many questions and he assured us that the clip would never come
loose, never have to be changed, never hinder the rest of his body. He would just now have a permanent tiny metal
clip sitting next to his heart. The
risks were bleeding and possible infection.
The anesthesiologist explained that he would be knocked out with
narcotics through his IV and that the surgery would take around 2 hours
including prep and recovery. The doctors
were all very detailed in their explanations and ensured that we had all of our
questions answered.
We prayed hard over our sweet baby
boy and asked God to work his power through the doctors and give our little boy
strength to endure. We had many people
praying for this surgery and God answered our prayers. The surgery was very successful with no
complications. Jordan is very
strong. His blood pressure rose right
after they clamped the valve but they said that was to be expected. They still have to do a CT scan tonight to
make sure that he didn’t have any brain hemorrhaging from the surgery. I lift that up in prayer right now to you
Lord. Please continue to bless our
little boy and ensure that no major complications arise. The doctors said that he was now stable again
and very strong. He overcame his first
major obstacle to a long and healthy life.
His next focus is intestinal circulation and nutrition. We know that we have to take each day as we
can and we are so thankful for God’s blessings!
Praise God for His success even when we know there is much more work to
come.
While we were in the NICU, we took
a video of Jordan moving around and such.
I am so much in love with him already.
It is crazy to believe that you can love someone so much and so
instantaneous. This is the closest that
we come to knowing God’s love for us. I
was able to have a bonding experience with Jordan today also. They dip a q tip in breast milk and allow him
to suck on it to gain immunities from the milk.
I got the chance to stick the q tip into his mouth today. He started sucking on it moving his mouth up
and down. It was a precious moment. I also got to touch his little toes and he
started kicking his feet to my touch. I
am so blessed. I am missing Jason today
but I won’t be able to see him until Saturday.
Jacob’s truck got locked in the hospital parking garage so he got
special permission to stay with me tonight.
We had no idea that the garage locked but we are thankful for the
understanding nurses. And thankful for
friends that will keep Jason for us. I
am exhausted from the emotional highs and lows today. I will pray and then sleep.
Lord I thank you for your awesome
power. It is such a blessing to be able
to witness your miracle in our son’s life.
You are already using him as a testimony. I know that my own faith and relationship has
been made stronger by this experience. I
also know that we have touched many with our story and our commitment to your
plan. I ask that you would continue to strengthen
our little boy. Please allow his
recovery from the surgery to be very fast and allow him to continue to face the
many battles he has with courage and strength.
We are so blessed and honored to be chosen by you lord. Please be with us as we deal with the highs
and lows of the situation. Let us lean
into you for strength. Be with Jason as
he is being left alone. We ask all these
things in your name, Amen.
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