Today was a very productive day. We
left the house earlier than normal because we had a meeting with Jordan’s
doctor and the pediatric doctor from the base.
The meeting was to determine the care plan for Jordan from now on and in
the future. For the first part of the
meeting, the doctors discussed Jordan’s care alone in order to decide the best
plan of action for the future. Jordan is
doing well. His respiratory condition is
slowly improving each day. They are
still using a combined treatment for his ventilator system. Sometimes he is on conventional ventilation
and sometimes he is on HFV. The goal is
to have him consistently on HFV because that prevents more ventilator damage to
his lungs. He is using his lungs by
himself, but he still needs the assistance sometimes to push the air out and stabilize
the oxygen intake and levels. The
doctors will be able to remove the ventilator tube at 30 weeks gestation which
is 4 weeks from now. After this, Jordan
will be on CPAP treatment which is a mask of oxygen that goes over his
nose. He should be on CPAP for about 4
weeks and then they will try to wean him down to not needing any extra oxygen
for breathing. The respiratory system
takes the longest amount of time. The
doctors are also going to be inserting a new feeding tube system. Instead of the normal tube that sits in the
stomach, they will insert a different tube that goes just past the
stomach. This will allow them to feed
him greater volumes of milk while avoiding reflux. Reflux is bad because some of the milk goes
into his lungs and causes a worse respiratory condition. The doctor had said that he was impressed by
Jordan and the accomplishments that he has made toward health because of being
born at such a young gestational age.
Praise God that Jordan is already being a testimony of God’s power and
grace at such a young age.
The doctors seem very knowledgeable and confident in their treatments and they
are always very thorough with their explanations and descriptions. We have been very blessed to work with the
Japanese doctors and we know that God placed us here specifically for Jordan’s
care needs. Eventually, we will probably
end up moving back to the states on medical orders to continue Jordan’s
care. None of this has been set in stone
yet though and the doctors are still taking Jordan’s situation on a case by
case basis. Our own base does not have
any specialists or advanced medical care so if Jordan needs any type of follow
on care, then the military would need to send us to a location that offers the
care for his needs. Please pray that God
would take care of all the details and that we would learn to trust fully in
his plans. God has everything under
control so we have no business worrying about the situation.
After we were finished with the meeting we came home and picked Jason up
early. Jason is getting to the point
where he doesn’t really need his naps anymore and doesn’t really have a desire
to take a nap. This is okay but I am
still going to require that he at least have a one hour quiet time (more for my
benefit than his lol). Jason LOVES to
kick the ball and is getting very good at it.
He is going to be a sports star for sure! Today he was playing with his cars with Jacob
and they were saying, “ready, set, go!” and then Jason would rev up his car and
take off with it. After a while, Jacob
started to play with him by saying, “ready, set, cupcake!” Jason thought this was funny but he did well
about not moving the car until daddy said go.
He wasn’t going to be tricked!!
Then a few minutes later as he was playing the game without daddy, we
heard him say to his car, “ready, set, cookies!!” LOL. We both started laughing. I love that he has so much fun and is able to
play by himself at times. I also love
that his imagination is really developing.
I look forward to watching both of my boys play and run around together
in the future.
After playing with Jason for a few hours, we decided to get some of our
much needed house cleaning accomplished.
Jacob and I worked hard and got a lot done. We really do enjoy having a clean house lol. It just is harder to keep up with the
cleaning when we already have a big schedule.
We also need to start organizing the house to be prepared in case we end
up having a short notice move in the future.
I am so thankful that Jacob has been by my side for this journey. I would not want to share these moments with
any other person. He has been a huge
support to me and I am blessed to have such a loving and caring husband. Soon he will be going back to work. I pray that I have much more energy by that
time.
Lord, we just want to thank you so much for choosing our son for this
miracle and this journey. We are so
blessed for his life and to have the ability to watch you work through
him. We pray that we are good
testimonies of your work for others to witness.
We ask that you keep your hands over Jordan and our future lives. Please continue to hold Jordan in your arms
and help him to continue to strengthen and develop so that he might lead a full
healthy life and be a great witness for you.
I ask that you would guide the procedure to insert the new feeding tube
and allow there to be no complications with that process. I ask that you would guide the doctors and
guide the base personnel as they make decisions that affect our future location
and future medical care. Lord, here we
are! If it is in your plans for us to move from this location then send us to
the place where we are most needed and can affect the most difference with our
lives and our testimonies. I thank you
for Jason and his development and personality.
He lights up our life with his spirit and we are blessed. Lord please bless my wonderful husband. I thank you that you have given me such an
awesome life partner to share in this journey of life. I am so blessed for his unconditional love
and care. Lord, thank you for your
love. We are so honored and we have been
learning so much. We will continue to
rely on you minute by minute and hour by hour.
We know that you have everything under control and will guide us in the
correct paths. We simply have to give up
our own control and let you handle things.
We are learning that things turn out much better when we let you pilot
our lives. Please continue to bless our
little boys and provide them both with strength and health. We ask all these things in your name, Amen.
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