Good evening! Or good morning to everyone in the states! Today has been a very good day. Yesterday was also a great day. Yesterday we didn’t go see baby boy like we
usually do on Saturdays. Jacob and I
decided to switch Saturday and Sunday so that we could go boating with some
friends. We had a great time. I wasn’t sure that I was going to be able to
enjoy myself since I was so worried about Jordan since the not so great news on
Friday. Jacob ended up calling the base
translators Saturday morning and they called the NICU to get an update. I was able to relax a lot more after hearing
that baby boy had shown improvement with his tests and was doing well.
Our friends had rented a boat from the recreation office and we went tubing
and water skiing with them. I only went
one round on the tube but it was a lot of fun.
I am sore today though. Only one
round on the tube and sore…yikes…I used to be able to go for hours when I was
younger…Im so old!! Haha…yep..23 is really old!! Jacob went on the tube several times and he
even tried the water skis. We were all
really impressed with his skills. He was
able to stand up and stay standing on the water skis for a while. No one else was brave enough to try the skis. Jason got in the water. We were going to put him on the tube with
Jacob and then drive the boat extremely slow but he didn’t want to. We did manage to get him to sit on the tube
for a picture though lol. Jason was the
only one who didn’t get burnt. We all
put on sunscreen but I made sure Jason had extra coverage. I thought I had good coverage too but I guess
I missed a couple of spots. Jacob is a
lobster though. He must not be a good
sunscreen applicator lol.
Today we went to church this morning and then right after church we went up
to Aomori to see baby boy. He had his
transfusion and looks like a strawberry from all the extra blood. A very cute strawberry I might add. We had a good cuddle time. He held my finger and made silly faces at
me. His CRP is down to 4.0 this
morning. The doctors are still unsure
about the location and type of infection that he has. They know it is bacterial but they are waiting
on the cultures for a diagnosis. Since
the inflammation is going down, the antibiotics seem to be working. The nurses said that Jordan is still very
active and energetic even when he doesn’t feel well. He doesn’t seem to show that he feels
sick. Tomorrow doctors are going to
decide the next step for the weaning from the ventilator process. They are either going to keep him on the ARPV
setting which is most like CPAP and matches his body the most or they are going
to switch over to HFO for the high frequency again. Whichever setting they decide, they will wean
the pressure down on the ventilator until it hits a normal range that will work
well with the CPAP. We don’t really know
when he will be off of the ventilator.
All we know is that they are working on things and taking every
consideration day by day. He could be on
for another few weeks if that is what he needs.
We are praying that he is able to come off very soon. He is getting 28-30% oxygen
concentration. By the time they take him
off the ventilator they will have it down to 21% concentration which is the
same as room air that you and I breathe.
God is doing great things in our little boy’s life and He has great
plans for him and for us.
At church this morning, our lesson was on the qualities of the Holy Spirit
as outlined in scripture. I thought this
was an interesting topic and I was encouraged by the discussion. The past few days have been rough for me and
I believe this is because I was starting to lose focus. I was fighting God for the control over
things going on in our lives. As I was
trying to hold all the control, I wasn’t focused on the blessings that we have
received and was focused on trying to fix all the problems. Today I needed this day in God’s house. He really spoke to me and helped me to reset
my focus on Him and His purpose. Jordan
is going through the things that he is for a reason. God is with him and I do not need to try to
find a solution. God has things under
control. When I try to control things, I
get overwhelmed. When I give things over
to God, I am encouraged and I see the positive blessings. Praise God for every circumstance in your
lives. We do not need to know all the
answers. God’s got this under
control. Look at how much Jordan has
already overcome. He was born 17 weeks
prematurely, He had open heart surgery, his digestion passed the test, he is
putting on weight and his organs are working like normal. He has overcome two different stages of
pneumonia and now has a different infection that he is working on. Jordan did not do this alone. All of these things were the work of God
healing his body and restoring His perfect creation. God has plans. I know that I am called to share this journey
and reach out to others. This blog is my
testimony. God speaks through me and
uses my words to reach out to others.
This is part of the plans that God has outlined for me. I am the voice to share God’s miracle. I am honored to have this privilege. We had a lesson in church a few weeks ago
about killing our pride. God cannot use
you if you become too prideful. This
weak I became prideful. God was testing
me on this issue and I did not do so well for a few days. No one is perfect, but God will use you if
you let Him.
My song for the day is Cornerstone by Hillsong.
If you have not heard this song, you need to. Please look it up! Christ is the cornerstone of our lives; the
strongest point of our entire being. If
we know this and allow God to work as our center strength; He will bless us
beyond measure.
Lord I praise your name for the power and grace that you have put into our
lives. You have planned out great things
for our lives. Often times as humans we
think we are missing out. But the truth
is that your plans and paths are much more rewarding and prosperous than those
of this world. You created us to have
life and to have it abundantly. Your
plans are to prosper us and not to harm us.
By being a Christian we are not lacking in the fun department. We are actually having more fun because we
are following your perfect plans for our lives.
Lord I praise you for this day. I needed to hear those words that you spoke
through the sermon today. I pray that
you would not allow me to lose my focus.
I give up my control over everything happening in our lives right
now. I know that your ways are much
better than my pride. I ask that you
would remind me when I am starting to lose focus and that you would shift my attention
back to you and your awesome power. Use
me and my words as a testimony for you lord.
Lord I praise you for the many things that you have done in Jordan’s
life. You have been healing his body
from day one. You have a purpose for
him. I pray that you would heal this new
infection completely and protect his body from future infections. Guide the doctors as they diagnose test
results. Guide them in the decision
process for the ventilator. Lord I pray
that you would be in their meeting tomorrow and guide them in the decisions
that need to be made. Continue to allow
Jordan to surprise them with his growth and success. Allow him to be a testimony for you. Protect us
as we travel lord. I also ask that you
would guide the process for our move. I
give over that worry to you and trust that you will make things smooth even
with the short process time and notification.
I praise you for great friends and for loved ones far away. Lord I thank for my mom. Thank you that she encourages me and lifts me
up when I am struggling the most. I am
blessed beyond measure to have been raised by two wonderful parents that love
you Lord and are great examples of Christ-like living. Lord allow us motivation this week to
accomplish our tasks with positive attitudes and allowing you to guide us each
step of the way. I ask all these things
in your name, Amen!
Side note: I promise to post updated pictures soon. It was brought to my attention a few weeks ago that a group of people are stealing people's photos on facebook and other sites of their premature babies. These people are then claiming the children as their own and are asking for money and donations to help pay for NICU costs. Because of this, I won't be posting photos unless they have tags on them that identify them as Jordan. So I'm working on doing this. I will have it working soon. Just know that he is still really cute! :D
Love you Lizzy! So very proud of you!
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