Friday, July 20, 2012

6 weeks old!! 7-20-12




              Jordan is 6 weeks old today! I am so proud of him and so grateful to God for Jordan’s progress and growth.  God has blessed us so much with this little miracle!  It is crazy to think that Jordan had all odds and all statistics against him; but he had God’s plan for him.  This just shows how powerful God is and how awesome his power is.  It is strange to think that I should be 29 weeks pregnant right complaining about all the uncomfortable things that come with pregnancy, but instead I am loving on my baby boy and watching God’s work change our lives completely.  I am so thankful for the blessings that we have been given.  Jacob and I are nowhere near perfect and we definitely don’t deserve God’s grace but He gives it as a gift and promises to stay by our sides while we carry out His tasks.  We only have to trust our hearts to Him.
 There is a big difference between religion and Christianity.  I often hear people say that they are not religious so they do not pray.  My response to this is, I am not religious either.  Religion is about rules and rituals that a person must do to obtain salvation.  Christianity is about a relationship.  Ephesians 2:8-9 says “For by grace we have been saved through faith and that not of ourselves, it is the gift of God, not of works least anyone should boast.”  This means that salvation cannot be obtained by works.  These are God’s words.  No matter what you do, you are not going to be saved unless you believe in Jesus with faith and commit to a personal relationship with Him.  We are all sinners.  Not one person is perfect except Jesus. Once you whole-heartedly believe that Jesus died on the cross to save your sins and you ask Him into your life to have a relationship with you; you have obtained your salvation.  You will never lose your salvation.  Once you officially and whole-heartedly belong to God, he will never leave you nor forsake you.  I do not pray because of religion…I pray because of my relationship with my savior.
Jordan was doing better today.  Yesterday his CRP level was at 2.4.  This morning it was 1.4 CRP.  This is the test that shows his inflammation response level.  Normal is 0.3 CRP.  It is continuing to drop.  We are so thankful for this.  Based on this progress, the doctor was able to switch Jordan back to SIMV.  This is the ventilator that allows Jordan to breathe on his own with support.  They are also able to slowly lower the oxygen concentration back to normal.  Jordan will continue the antibiotic to finish fighting the bacteria.  Since he was just transferred back to the SIMV ventilator this morning, his oxygen was not quite stable yet.  The doctor was changing settings and trying to get the machine to match Jordan for the best success.  I am so thankful for doctors who are wise and truly care about Jordan’s immediate care and future care.  Everything they do for his treatments are done after considering all options and weighing all variables.  They consider how each treatment will affect his future rather than just consider the current moment.  They started the steroid treatment to his lungs to begin weaning him from the ventilator.  Since Jordan has Chronic Lung Disease (CLD); he needs the steroids to help repair his lung tissues faster so that he can come off of the ventilator faster.  Lord willing, he should be able to come off in about 8 more days.  Pray that God would time everything perfect to allow Jordan the best health and circumstances. 
It was really cool to see him on this ventilator because we were able to see which breaths were from Jordan and which ones were mechanical breaths.  The SIMV ventilator helps Jordan breathe independently.  When Jordan begins to inhale, the machine provides the oxygen concentration and the pressure for the breath.  If Jordan doesn’t take a breath, the machine gives him a mechanical breath.  I think these machines are so awesome.  Medical care has definitely advanced with technology.  Praise God for new research and growing medical advancements.  Jordan was breathing independently a little more than 50% of the time.  The doctor explained that Jordan’s breathing is still shallow so he needs the assistance of the ventilator still.  They are optimistic that they can wean the machine and encourage Jordan to breathe alone in the next 8-11 days so that he can be off the ventilator.  This is the goal. Jordan is also on a new medication that is an asthma treatment.  It is supposed to stimulate his brain to make his lungs work.  Jordan looks so much bigger now and a lot healthier.  I can’t wait to cuddle him in my arms and smother him with kisses!
Jacob and I are going to try to get back into our healthy routines of exercising and eating right.  Pray for us as we work on this.  Health is a goal that we have for our entire family.  I need to lose some weight and make some changes.  We are going to start slow and do things together.  I am so thankful for my life partner.  I am so thankful for his support.  We both deal with emotions differently but when we need to come together and sort things out then we do so before we move on.  God created us to be the other’s life partner.  I really like who you picked for me, God! ;) Jason had a good day.  He really does enjoy his cars and trucks.  I also love to watch him play with Lucy.  They are like best friends at home.  They chase each other around, get into things together, and steal each other’s toys.  LOL.  I look forward to when Jason, Jordan, and Lucy can be playmates!
Lord I thank you for your salvation.  I thank you for leading me to you through your people.  I praise you for preparing me for this journey.  I praise you for supporting me and my family as we do your work and walk the steps that you have planned out for us.  I ask that you would continue to strengthen Jordan.  Please remove the infection completely.  Bless Jordan’s lungs and allow them to continue strengthening and healing.  Allow him to increase his breathing strength and frequency daily so that the doctors can take him off of the ventilator as scheduled.  Your timing is perfect.  I ask that you would be with Jacob and me and give us rest and endurance.  More than anything we want Jordan to be home with us.  We know that it is in your plans for us to walk this path and we pray that we do so humbly.  We ask that you would use our voices and help us to tell this story to reach people for you lord.  Give us patience and grace.  Thank you so much for our two precious little boys.  I pray that you would allow us to look back on this one day as just a memory.  I ask that you would bless the prayer quilt project and allow your love and grace to encompass everyone involved and everyone praying.  Thank you for providing a strong body of believers to support us and strengthen us.  I pray that you would use my words to plant seeds.  Praise your name for continued progress with Jordan.  Be with Jason as he rests.  Continue to help him grow and develop his imagination.  Give us the strength to become more serious with potty training and give Jason the patience to deal with us.  Give us rest and prepare us for tomorrow.  In your name we pray, Amen.

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