Wednesday, July 11, 2012

33 days old 7-11-12


                Jordan is 33 days old today.  He is quite the little angel.  I will just tell you that I might be biased in this statement but he is one of the cutest little babies that I have ever seen!!  I think him and Jason are tied as the cutest boys in the world! ;) lol.  As he develops and grows he really is looking so much better.  The comparison from his beginning pictures is amazing to me.  His skin is pinking up and is more baby color; he is getting the oily coating on his skin to help keep it moisturized.  He is gaining weight and is getting some little rolls on his body.  I love to see his little chub rather than his ribs.  Definitely a good thing.  He is still sooooo tiny though.  If you take both of your hands and put them horizontally side by side, you could probably cup his body in your hands from head to bottom.  I so badly want to cuddle with him.  If someone had a shrinking machine I would borrow it in an instant so I could crawl up into his incubator and love on him.  I pray that God would give me the patience and endurance to wait on His perfect timing.
                Jordan is doing so-so today.  On one hand, his infection/inflammation is clearing up very nicely.  The antibiotics seem to be working very well.  The doctor said that he is on three different types of antibiotics and he was able to stop one of them today because of the progress with the inflammation.  He will continue the dose of the other two just to make sure that the problem goes away completely.  His breathing is also much more stable.  Today during his blood work, they found that his hemoglobin levels were low.  Normal levels of hemoglobin are about a 15.  Jordan’s levels today were at 10.  Hemoglobin is the protein that carries oxygen in the blood.  Because he is on the ventilator still, it is very important to keep his hemoglobin levels normal or even high.  They gave him a blood transfusion this afternoon to boost his levels.  This is his third blood transfusion since birth.  When I think about a blood transfusion it really scares me because that sounds so serious but the doctors did not act like it was that big of a deal.  They seemed to treat it like a routine procedure for micro preemie babies. Also a friend, whose daughter was born at 24 weeks and is now a healthy 7 year old, shared with me that her daughter had twelve transfusions in the first month in the NICU.  This really makes me feel more comfort.  It is nice to hear from other mommies about their experience.  It helps me not to worry as much.
                I was telling Jacob and a few other people today that it seems like time is kind of standing still.  Sometimes I feel like we will never get out of the NICU.  I understand that things take time though.  The nurse was explaining to me that she has observed that we want to see big changes but that is not how it works.  She explained that he has very small milestones every day and this is normal.  He is working toward the big milestones slowly.  I need to work on my patience.  I want to speed things up but I know that I have no control in that.  I just pray for endurance.
                After we visited with baby boy, we ran a few errands.  I have to start getting the house ready and organized to be packed up at a moment’s notice.  As things progress with the move, it will take a while to get approved and set up.  Once that happens, then it will go quickly.  We need to have the house prepared ahead of time in case we only have a few weeks’ notice.  Just more to add to the to-do list!  I plan on accomplishing a lot tomorrow so pray for motivation!!  I am looking forward to the move back to the states because we will be (hopefully) a lot closer to the NICU and able to see little boy more often.  On the other hand, I am a little scared to leave our huge support system that we have here!!  I know that God has it all planned out to perfection though.
                We spoiled Jason a little today by buying him his first remote control car.  I think Jacob really wanted to play with it too lol.  Anyways, Jason had a BLAST.  He was laughing and giggling hysterically.  He even yelled “YEEHAW!” LOL we were not expecting that to come from his mouth.  We have planned a big surprise for our day with Jason tomorrow! Since Jacob will be returning to work next week, we thought we would make the most out of our last home week-day. We are going to build a huge fort in the house and play some great games.  I can’t wait to see how Jason reacts! It is so much fun to be a kid again!  I will be sure to let everyone know how it goes!  Tomorrow is also the first day that we don’t have any appointments to get to.  It will be nice to catch up on things.
                Mark 12:30 says “Love the Lord your God with all your heart, with all your soul, with all your mind, and with all your strength.”  God does not want just part of us.  He wants every part of us.  He wants all of our heart, soul, mind, and strength.  This really spoke to me.  God does not want us to live partial lives with partial energy.  We need to give our ALL to Him and His work every day.  At the end of the day, when we are exhausted, if we did all for the Glory of God, then He is very pleased.  He gives us the energy we need to endure and work through His purposes.  It is okay to be tired.  A hard day’s work for God is one of the most rewarding things we can experience. It does not matter where we worship God.  It only matters how much of ourselves we give while we worship. How can we give every single part of our lives to God?  By including Him in everything we do.  This includes laundry, dishes, errands, etc.  Do all tasks as if you are doing them specifically for the glory of God.  This is something I definitely need to work on in my own life.
                Lord, I ask that you would give us the endurance and strength as we live our lives for your purposes.  You have planned out our futures and our paths.  Lead us in the right directions and give us the wisdom to discern your voice and your calling above any temptations trying to lead us astray.  Please be with Jordan and continue to give him your strength and healing power.  You have promised to never leave us nor forsake us.  I ask that you would help us to endure as it seems that time is standing still.  We praise you that Jordan’s infection/inflammation is clearing up so well.  You hold all the power and are guiding his health.  Give the doctors wisdom as they plan out his treatments.  We also ask that you would just allow the transfusion to be very beneficial to his body and that progress would be made in his development and growth.  Allow his body to accept the transfusion with no complications.  We are always praying and always trusting.  Be with us tomorrow.  Give us the motivation to accomplish some tasks at home and to prepare ourselves for the next plans in our journey.  Help us to have a great “special” time with Jason and allow us to help him feel really special and important in our lives.  We are so blessed with both of our boys.  Thank you for these blessings.  Be with us as we rest tonight and return our strength.  You provide rest to the weary.  We find our rest in you.  Lord we are so grateful for all that you have done in ours and Jordan’s life.  Thank you for choosing us to be his parents and for preparing us for this journey.  We are amazed by your miracles and your power.  We love you Lord, Amen.

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