Sorry about not blogging so often.
We haven’t been getting updates on the days that we don’t go up to
Aomori. It will probably be like that
for a while so I may not blog everyday unless I feel led by God to speak about
something in particular. I had a rough
day today. I was not happy this morning
as we were having a few translation conflictions. It’s really hard to not be able to call the
NICU whenever I want to get an update on baby boy. I wish I could call myself but with the
communication barrier it can be a challenge.
Today we went to Aomori later than we usually do because we were
scheduled to help give Jordan his bath.
Two days ago, his inflammation had gone up a little bit and the doctors
had thought that it was because his body was reacting to being on the
antibiotics for too long. So they
stopped the antibiotics to observe.
Today the inflammation response test went up significantly. It was at 1.5 CRP on our Thursday but then
today it was up to 7.5 CRP. You guessed
it…baby boy has another infection.
The doctor said it is a bacterial infection. They did a few cultures and a blood exam to
determine the type of bacteria and to see if they could pinpoint the location
of the infection. It could be in his
lungs again but his x-rays were clear so it is not another pneumonia as of
now. They said that his oxygen and vital
signs had been stable and he has good activity.
Because he is so tiny, they cannot do multiple blood tests in one day
like they could with an adult so it can be harder to find the exact location of
the issue. They started him on a
different antibiotic…well two different kinds of antibiotic. They are using a low dose of these. The lowest dose possible. It is difficult because babies this young
catch infections easily because of reduced immunity but being on lots of
antibiotics creates immunity in their body to those antibiotics just like it
would for you and me.
Jordan also needs another blood transfusion because his hemoglobin levels
are low. He usually does well after he
has gotten blood and I have heard that it is normal for preemies to get
multiple blood transfusions. This will
be his fourth transfusion since birth.
Jordan also had an eye exam yesterday but they were unable to determine
his eye condition and sight because his eyes are still cloudy. They said this was normal and they will
recheck in a week to see if the cloudy is fading. Premature babies often have eye issues but
these can usually be corrected with either glasses or eye surgery.
Jordan was celebrating the Nebuta festival with his own little festival
decoration. This is the festival with
all the huge Japanese floats. I think it
is awesome that they try hard to allow the babies and their parents celebrate
the festivals even when they are in the NICU.
We had the pleasure (not really) of experiencing a time of distress for
Jordan. I was able to help with his bath
today and it was nice to be able to help with his care. I did most of the cleaning on him. Right after his bath, the nurses were
positioning him and adjusting him again when he decided to stop breathing. The ventilator tube could have been partially
blocked against his trachea from all the moving but whatever the reason, Jordan’s
oxygen saturation went down to 24% rapidly.
The doctor had to use the oxygen bag and do a manual pump of oxygen into
his lungs for several minutes to get the number back up and stable. This was really freaky to watch. I was not okay seeing my little boy in such
distress.
I haven’t been leaning on God today like I should. The human in me always tries to wrestle back
control over everything. I am certain
that this is why I have been struggling so much today. I need to give up the control and let God
handle things. He controls things much
better than I do anyway. The nurse
assured me that the oxygen issue was not my fault and was just something that
sometimes happens. It didn’t really feel
like it at the time though. Jacob was
telling me that I wasn’t being positive today.
It is difficult to be so positive each and every day. I think it is normal to have a rough day here
and there.
Lord, I pray hard that you would be with baby boy and this new infection
that he has. I ask that you would place
your healing hands on his body. I pray
that you would boost up his immunity and allow him to have a break from this
struggle. I know that your plans are
perfect and I pray that you would infuse him with your strength. Lord I pray that you would give him complete
healing. Place your hands on his lungs
lord. Help the doctors to figure out
where the new infection is located and how to stop the infection with the
correct treatment. Give them wisdom and
guidance. I pray that you would continue
to let him have clear lungs and give him respiratory stability. I pray that you would not let him have any
more respiratory emergencies like the one we witnessed today. Allow the doctors to continue weaning him
from the ventilator. Guide the weaning
process. Be with Jordan as he receives
this transfusion and protect him from harm.
Strengthen him with this transfusion.
Lord I pray that you would be with Jacob and I . Help us to lean on you when we are feeling
discouraged. Give us strength and
endurance. Help us to not be burnt out
from our constant schedule. This is a
long road. One we will get through with
you by our side and leading the way. Help us make the best decisions possible for
our family and our little boys. Be with
us as we rest and refresh our spirits.
Lord speak to us and through us.
Guide us in our paths and help us to be a light for others. I ask that you would be with Jason as
well. Help him to know mommy and daddy’s
love. Help us to give him as much
attention as he needs. Lord I pray about
the communication issues that we are having.
I pray that you would place your hands on that situation. Allow us to have peace and confidence in your
will. Give us all strength, endurance, and
patience. We ask all these things in
your name, Amen.
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