Today was a great start to the week! We were able to sleep in this morning. We had already planned on leaving later than
usual to see Jordan because we were going to attend the Nebuta festival by the
hospital in Aomori at night. I was able
to skype with my family this morning which I really enjoyed. I miss all the energy that goes on in a house
with so many people. They were making
home-made butter. My dad and the boys
were using a butter churner and my sisters were using a jar method. They were having a contest to see who could
make their butter the fastest. LOL Someday I hope to have contests with my
boys that are similar! I just love my family so much! Cannot wait until we are close enough to be
surrounded by them!
This morning we left
even later than we had planned on leaving.
We seem to be good at being late.
Today I was delayed in getting everything ready because I got out of the
shower and found Jason and Lucy playing tug-a-war with Jason’s dirty
diaper. And Jason was running around
with a bare booty. Oh the joys of having
a boy!! I told him that we do not play
with our poo poo. Im not sure that it
sunk in….
When we finally made it
to Aomori, we were able to see baby boy.
Hes such a cutie. He just melts
my heart every time we see him. His CRP
level has been the same range for the last few days and has been fluctuating up
and down a little bit. The doctors do
not think that he has or ever had a third infection. All of the cultures that they have taken have
come back negative for any growth. Because
they do not have positive data on the cultures, they have to look at all the
symptoms as a whole to figure out what is causing the inflammation. The at first thought it might be related to
long term antibiotics because his platelet levels had been dropping but the
platlet levels have been dropping quickly and not gradually like they would for
long term antibiotics and the antibiotics don’t seem to be lowering the CRP
anymore. Based on these factors, they
believe he may have a fungus instead of an infection and his body is reacting
to this instead. So they changed his
medication to one that reacts to fungus and they will observe things to note
any changes.
Jordan’s respiratory
condition is good. His breathing is
strong and regular. Because of this,
they will take him off of the ventilator sometime this week. Praise God!!
He will switch immediately to CPAP (continuous positive air
pressure). This is a nose mask. The doctor said that he believes Jordan is
ready for this step. They did let us
know that it is possible for him to get tired from taking on the entire
breathing process alone. If he becomes tired
and starts having issues they may have to put him back on the ventilator for a
day or two and then take him off again.
Keep this transition in your prayers.
We are praying that he would not need to go back onto the ventilator at
all once he is off. We are so blessed by
this little miracle baby. Once he is off
of the ventilator he will no longer be considered to be on life support. Jordan still has a long way to go before he
can come home but this is the biggest step yet toward his complete health.
After visiting with
baby boy, we drove around a bit and then our friends met us in Aomori. They brought Jason with them so we could all
enjoy the festival together. We walked
to the festival and found a spot on a corner to sit. We watched the parade for about an hour and a
half. The floats were huge and very
detailed. They were all lit up and very
extravagant. We enjoyed watching the
floats and the dancers. Jason loved the
drums of course!! He had a lot of
fun. They give out bells and he enjoyed
playing with the bells. It is difficult
to describe the floats so I will share a few pictures. We had
a great time. We left before all
the floats were done but they just kept coming lol. We then enjoyed dinner at CoCo’s curry before
we left. This was good because not only
is CoCo’s Curry AMAZING, we also were able to avoid the post parade traffic
jam! YAY!!
Lord we thank you for a
great day. We praise your name for the
work that you are doing in Jordan’s body.
We thank you that he is finally ready to come off of the ventilator. We pray that you would allow this transition
to be a smooth process is no struggles.
We thank you for the wisdom of the doctors and their commitment to
Jordan’s health. We ask that you would
allow the medicine to work on the fungus and allow his inflammation to be
healed completely. We are so blessed by
Jordan’s life and we are honored to be his parents. Thank you for choosing us for this
journey. It is awesome to watch this
miracle first hand. We ask that you
would continue to give us endurance and strength as we still have a while to
go. Lord we praise you for allowing us
to be in this location so that we can experiences things such as the Nebuta
festival. We thank you for the great day
you have given us. I pray that you would allow us some rest and allow us to
have a very productive day tomorrow. We
need to get a lot of things accomplished.
Thank you lord for this past weekend that we had with Youth Rally. It was amazing to watch you work in the lives
of the Japanese youth. We were blessed
and touched by the message as well. Lord
I pray that you would use us to plant seeds in the lives of many. Jacob loves to serve you by playing his
drums. Give him the chances to use his
talents to please you. Lord use us as we
go through this journey with Jordan.
Speak through my words and speak to many. Give us strength and courage to share our
faith and our story with those you place into our path. We ask all these things in your name, Amen
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