I will write a new blog post tomorrow about all the wonderful and
crazy things that are going on in our lives. For now, here are some
pictures of my sweet boys and family! I am blessed beyond measure to
have these awesome guys in my life! My cup runneth over!
Our Journey with Jordan. My name is Elizabeth I have an amazing husband-Jacob, and two precious little boys-Jason (2 yrs) and Jordan who was born at 23 weeks gestation. Jordan was delivered 6-8-12 by emergency c-section because I had severe HELLP disease. He was 12.3 oz and 9.8 inces. We believe that God is all powerful and has amazing plans for our lives and the life of our miracle baby. This blog will share the details our journey, experiencing God’s miracles through our family day by day.
Saturday, September 15, 2012
Friday, September 7, 2012
9-7-12 Three months old...tomorrow! ;)
Jordan is THREE months old tomorrow! Oh my goodness. I can’t believe how far he has come. It has been such a journey and such a
blessing to spend this time with our little miracle boy! What a mighty God we serve. Jordan now weighs about 2lbs 12 oz. He has been having a few issues. His weight seems to be fluctuating. At first he wasn’t gaining weight. The doctors explained that they though he was
using up too many calories for breathing that he wasn’t putting on the weight
like he should. So they raised the
support level on his CPAP so that breathing would be easy for him. He started showing weight gain again after
that but today he lost about an ounce.
The doctor said not to worry about it though. Much easier said than done
of course. It is a good think that Jacob
and I have been giving all of our worries to God because I think we might be
crazy by now if we didn’t. Jordan needs
to gain weight steadily so that his lungs can heal. The goal is to have him off of CPAP and
breathing on his own by about 40-42 weeks gestation. So about 4-5 ish weeks. He needs to gain. Grow baby boy!!
Jordan’s eyes are one of the main concerns right now. They are checking his eyes twice per week for
ROP. His left eye seems to be developing
almost normally. He has ROP in his left
eye but it is not progressing at all and is stable at a very mild level. His right eye has been diagnosed as stage 3
mild ROP. Basically there are extra
blood vessels growing in his eye that aren’t supposed to be there. This is normal for premature babies because
their bodies try to develop quickly outside the womb. Right now he does not need surgery or photo
therapy treatment but it is a possibility for his future. We are praying that the progression of the
ROP would stop and stabilize so that Jordan can have full sight. We also pray for the doctor’s wisdom to be
able to make the decisions necessary at the correct time.
Jordan may have another infection but right now we are unsure. His CRP was 1.7 today after they stopped the
antibiotics yesterday. This is not extremely
high but it shows that his body is fighting something. It could be just irritation. The doctors will observe and take cultures to
watch this. The good news is with his
platelets. Today the number was 6.8. Yesterday it was 3.2. This is great news because with such a high
jump in numbers, it means his body is now making platelets regularly
again. Hooray!! We were getting worried there for a bit with
those daily transfusions he was getting.
Jordan and I cuddled for almost two hours today. He is such a sweetheart and he snoozed pretty
much the whole time. He snores kinda…haha. It’s SO adorable!! He looks a lot like his daddy when he
sleeps! He kept kicking me and wiggling
around to get comfy but once he found his spot he was good to go! His oxygen
saturation was 99% for a lot of the time we were cuddling he was just very
content! And so was I! I love his cuddles.
You know, part of me is still really afraid to handle him because he is
so fragile and tiny…but these cuddles have been a huge blessing. We finally feel like we can do something to
contribute to his care…..we can love on him! :D
We were supposed to have a meeting today to discuss Jordan’s transfer and
make decisions about his flight but it was cancelled. The NICU had a brand new baby born today and
the doctors needed to focus on giving that baby the best care possible. We were there doing kangaroo care when they
brought the baby in. He/She was HUGE…haha…well
like maybe 4lbs….but that seems HUGE to me right now! It was great to see all those doctors working
hard and taking every precaution to give this baby the best care! I pray that baby is very healthy.
I have been thinking a lot about Jordan coming home and I am so excited and
so nervous all at the same time. Mind
you we still have at least two more months before that will happen but we want
him to be with us! It’s really a strange
thing to have your baby but not have your baby. It is really frightening when his heart rate
slows down or his saturation gets low. I
am going to be really nervous to take him home!
It is hard to think that I would be 36 weeks pregnant right now if my
body had agreed with pregnancy. I am so
thankful for the time we have had with Jordan though. It has been a blessing to watch God’s
creation on the outside. I find it
amazing to see his power! I have grown a
lot through this experience and I know that God is using me for great
things.
Jason is doing well. He is such a
goofball. We just love him to
pieces. He makes us laugh so much! He is starting to get more defiant though…hmmm
I wonder where he got that from…..maybe his mother…hah! He will stare directly into my eyes with that
ornery smile as I tell him not to do something and he will do it anyway. Such a two year old!! Today on our way home he told me all about
his day! It was so great! I love having conversations with this little boy! He
is so smart and so big. I love that he
tells me “Tanks mamma” for everything! It just melts my heart! He is doing so
good with potty training. Step one is
accomplished. When we put him on the
potty and tell him to pee he does it! Wooohoooo!!! He gets so excited too. And we of course throw a party in the
bathroom. Now we need to work on step
two where he will tell us he needs to go rather than just going in his diaper
if we forget to take him or don’t ask him soon enough. Any potty training tips you wanna share?
We have been doing a lot to prepare for moving. Lots of organizing, researching, and dreaming
going on here! We have a lot to consider and think about. We want to make sure we have a plan set up so
that things can go smoothly. Jacob and I
will have to fly separately. I will fly
on the medical transport with Jordan and then Jacob will fly on a commercial
flight with Jason and Lucy. Lucy cannot
fly on the medical transport so that’s why we had to do separate flights. One of the guys working on our paperwork told
Jacob that it might just be easier to get rid of the dog…hah…rude! Of course
Jacob told him that was not an option.
Lucy is part of our family too.
There is no way we are moving without her! Luckily its just one straight through flight
right to Seattle! Pray for Jacob ! LOL
Jacob and I were reading in our devotions today about how God uses the
trials in our lives to refine us into Gold.
HE has great plans for our lives and He is molding us and shaping us how
He wants us for His perfect will. This
journey is not meant to bring us harm and heartache but to prepare us for our
purpose. God is using us and we are
growing. We want to be big green trees
with lots of great fruit! God also has this desire for us and will prepare us. What a mighty God we serve.
Lord I pray that you would continue to guide our family. You have made it very clear as to the path
you would like us to follow with this journey.
You have guided us each step and we trust that you will continue to
guide and lead us to where you want us.
I praise your name for my two beautiful boys. Lord you know the needs of Jordan right now
and I pray that you would fulfill those needs and breathe health and strength
into his body. Perform your miracles and
heal his eyes. Allow his body to grow
and thrive. Create in him a pure heart to serve you and guide others to
you. I pray that you would be with Jason
and his potty training. Allow him to
start taking control and make that transition.
I praise you that he is doing so well with it right now. Give us the patience to keep plugging away
and cheering him on toward this goal.
Lord I ask that you would be with our move and the decisions that we
have to make. Allow us to make wise
decisions that will benefit our family.
Help us to allow you to lead.
Show us where you want us to live, serve, and grow. Lord I pray for Jacob and that you would give
him the skills he needs to lead our family.
He is the leader of our home and I pray that you would help him to seek
after your direction each step of the way.
I thank you for making him into the husband and father that he is. Teach us and help us to grow in you
together. Thank you for your blessings
and the beauties of your creation. We
love you lord. Amen
Thursday, August 30, 2012
12 weeks old!! 8-30-12
I am very sorry that it has taken me an entire week to blog again. I have been so busy. I promise to work harder at blogging more
often in the future. Bear with me as my
life is pretty crazy. It’s a good thing
that God is at the steering wheel! This
has been a big week for our family. We
have grown in many ways. It is amazing
how God directs life. We sometimes do
not understand why things have happened but God has a plan for each one of
us. Romans 8:28 says, “And we know that
in all things God works for the good of those who love him, who have been
called according to his purpose.” This
is such a great promise and reminder!
Everything happens for a reason.
Everything happens for God’s reason.
This week Jacob and I started doing a couples devotion. In Delaware, our Sunday school teacher
stressed the importance of growing together in God. He used the analogy of a triangle. God is the point of the triangle and the
husband and wife are the points at the base.
As the couple grows closer to God, they move up the lines of the triangle
to reach Him. If they move closer to God
together, they also move closer to each other.
If one moves closer to God, he or she moves farther away from his or her
spouse. We decided that it was way past
time for us to grow in God together.
Anyways, we have been learning so much with this devotional time. I encourage you to do devotions with your
spouse or significant other! You will reap the benefits! We
are able to support each other, keep the other accountable, and grow in godly
love. God is doing great things.
Jordan has been doing pretty well this week. We have been praying through his issues and
we have seen some improvements and answers.
He has had a few bumps in the road though. Last Friday was our first day of Kangaroo
care. We were so excited for this
moment! Jordan had a rough time with the
transition from the incubator to my chest.
His oxygen saturation levels were all over the place. We were actually able to hear him cry for the
very first time. Once he was settled and
all tubes were once again connected he did great. He enjoyed his time and his alarms actually
went off because his oxygen levels were too high. It was such an amazing experience to finally
be able to bond and cuddle with this sweet boy!
He is still very little and it feels like I am once again a brand new
parent. He just feels so fragile. His looks are deceiving though! He has the
strength of God coursing through him!
What a mighty God we serve.
On Monday, it was Jacob’s turn to have some bonding time. Jordan had a much more smooth transition from
incubator to daddy. Things went very
well for the first 30 minutes of their cuddle time. They had to place drops in Jordan’s eyes
during the cuddle time since he was going to have an eye exam after we
left. About ten minutes after they did
the drops in his eyes Jordan gave us all a heart attack. For some reason he decided to stop
breathing. His oxygen saturation went
down to 8% and his heart rate went down to 58bpm. Here he is cuddling on daddy’s chest with all
the drs and nurses trying to get him to breathe again. What a frightening experience. What lasted only about 60 seconds seemed like
a lifetime. It made me very thankful that
Jordan is in a place where he can receive the necessary quality of care. All I could do was stand there and pray “Please
God help him breathe NOW!!” The doctor
explained two reasons as to why that can happen. Sometimes babies have a reaction to the drops
because they do not like how it affects their eyes. This can cause them to stress and affect
their breathing. The other reason was
that Jordan was maybe just too comfortable on daddy that he forgot to
breathe. The dr showed us some
techniques to ensure that we are engaging him and stimulating him during our
kangaroo time so that he still has to actively think about breathing. I pray that we never have to experience that
again.
On Wednesday our cuddle time was perfect!!
Thank goodness we finally were able to have a great session. He didn’t have any problems during the
transfer and kept his oxygen levels stable the entire time. He made cute little baby noises for me and
seemed to just be really comforted by our cuddle time! I was able to cuddle with him for about an
hour and a half!! Such a great way to
bond with my boy. Jacob gets to try the
cuddling again tomorrow. I pray that
things will go just as well for him.
Jordan has a few things going on with his health. His ROP moved up to getting checked twice per
week because they noticed that it was getting a little worse. His current eye status shows that his ROP is
still very mild and he does not need treatment at this time. They will continue to monitor him twice per
week to make sure it does not progress negatively. Jordan has another infection but it is
mild. The culture shows the same
bacteria that he had about a month ago, pseudomonas. The antibiotics seem to be clearing it up
rapidly and it doesn’t seem to be causing issues in his body. Jordan went from a high level of breathing
support with the ventilator to a low level of support with the CPAP. Since he has been off of the ventilator he
has only gained one ounce. He should
have gained half a pound or more. The
doctor thinks that this is because he is working very hard to keep his oxygen
saturation up and he is burning too many calories. They are treating him by raising the support
on the CPAP. It still occasionally gives
him a mandatory breath through the nose mask so that his breathing can be
comfortable and he can use more energy for gaining. We need him to gain weight in order to heal
the CLD (Chronic Lung Disease) in his lungs.
They can repair themselves but they need to grow. Please keep this in your prayers.
Jason has finally been showing an interest in potty training! Hooray!! I have been waiting for him to show me when
he is ready because it’s not like I really have a bunch of extra time on my
hands. Lol. For the past two days he has peed in the
potty several times! He doesn’t have a
dry diaper yet though and he doesn’t usually tell me until after he goes but
progress is progress. He gets SO excited
when he actually does go. I think he
really enjoys the praise! I love to watch him copy the godly examples that we
set for him. If one of us is doing devotions
then Jason goes and grabs his bible and pretends to read from it. The other day I looked up from my prayer
after I had finished my devotion and Jason was sitting in his booster chair
with his hands folded and his head bowed.
What a precious little boy! I pray that we can be great examples to him
and lead him to Christ as it is our duty as his parents.
We received our assignment this week.
We will be heading to Seattle, Washington. We are really excited about this but we were
not expecting it at all!! Now we can
begin planning and preparing. The base
is connected to the army base and they have a great medical hospital that
provides all of Jordan’s future needs. I
am looking forward to spending more time with Jordan. This should be a smooth transition with only
one direct flight. We are going to need
to buy cars when we get there and find housing.
We have been researching away since we found out and we know that God
will work everything together perfectly.
He has the perfect house, vehicles, church, and situations for our
specific needs according to his plans. It
really is amazing how much less stress you have when you let God handle it
all. My burdens are light!
The only thing that seems to be not working out so great at the moment is
that I have to quit school in the middle of my program and pray that my credits
will transfer to a new school. I have
been going through University of Phoenix for my teacher certification program
but Washington State does not accept my program for licensure. Transferring to another school is my only
option to continue. Pray that God would
make this transition smooth and allow me to finish my program without too many
wasted classes. I am looking forward to
the break from school while I transfer though.
I think I need some rest to regain my excitement. I haven’t been very motivated for school
recently. It is all in God’s hands.
Lord I thank you for this day and this week. I thank you that we have received many
answers to prayers this week. We are so
thankful for the 6 week notice of orders.
It is really nice to have the extra time rather than only 2 or 3
weeks. I pray that you give us the
motivation to accomplish everything we need to do and that you would guide the
transition and direction of our lives.
Help us to allow you to lead us.
I thank you for sweet little Jordan.
I ask that you would help him to gain weight steadily and healthy. I ask that you would heal his lungs and give
him a complete recovery. Allow him to
have no lasting problems with his severe prematurity. Allow him to be a testimony of your power and
allow us to be the voice about the miracles you are working in his life. I pray for Jason and his potty training endeavor. I pray that you would give us patience and understanding. Help Jason to work on his skills and become a
wonderful big boy! I thank you for the
time I am able to spend with my husband in our devotions. I am really enjoying spending the time
growing in you with my partner in love.
I ask that you would give us the strength and wisdom that we need for
each day. Help us to follow wherever you
lead. Prepare for us the things we need
in Washington and make our transition smooth.
I ask all these things in your name, Amen
Wednesday, August 22, 2012
75 days old. 8-23-12
I know I haven’t blogged for a few days.
I have been busy. This past
weekend we decided to stay home since I was fighting a cold and we didn’t want
to share germs with the little man. I
slept for a lot of the weekend and ended up feeling a lot better by
Monday. Monday was a great day for
us. We woke up late and didn’t have a
very restful night of sleep but walking in the NICU to see Jordan on CPAP was
the perfect day changer. They had said
that they were going to put him on CPAP on Monday but until he was actually on
it, I wasn’t going to get my hopes up…or I wasn’t going to admit that I had my
hopes up. Lol. It was so great to see him on the CPAP
though. We are so blessed with
Jordan. How amazing that he has
graduated to this awesome step. He is no
longer considered to be on life support! What an awesome miracle his life has
been.
Since they had just changed to CPAP, he was a little unstable with his
breathing. They told us that it takes a
couple of days for him to adjust to the lower level of respiratory
support. Jordan also didn’t seem to like
the CPAP mask at all on Monday. I think
he was glad to have the tube out of his throat but the mask over his nose was
not working for him. He kept trying to
pull it off or move it with his hand.
Even when they tried to put his hands under the blanket he still managed
to get them loose and mess with the mask.
Some of the faces he makes looks like he is trying to cry. I can’t wait to hear his cry. That seems like a weird thing to be excited
about.
Yesterday was a home day. We did a
lot of cleaning and then we had some friends over for dinner. It was nice to do something different. Looking forward to when Jordan can come home
and be with everyone. Yet also in all
honesty I am scared of him coming home because I am not as qualified as his
awesome nurses and doctors. But I know
by that time they will make sure I am ready to take care of him on my own. Jason had so much fun having his friends over
yesterday. He loved showing them all his
toys and having his own stuff around him!
It was cute to watch him.
This morning we got an update from the email about a few things that they
were doing to help Jordan’s breathing to stabilize while on CPAP. They are giving him a medication that makes
him pee more frequently. They are also
only giving him IV nutrition. This is to
eliminate the extra fluids that could make him bloated. The CPAP machine causes a lot of air to go
into his tummy so they have to take that air out so that his tummy doesn’t bloat
and push up on his lungs.
Today they placed him on a different type of CPAP. It looks more like the oxygen nasal prongs
except the prongs fill his nostrils. This
one is a little different but it doesn’t put air into his tummy like the other
one so it is better for him. They have
the pressure setting high and the oxygen setting high as he is
stabilizing. He was doing a lot better
today. His oxygen was staying stable
with very little Desats. He also seems
MUCH more comfortable with this new CPAP because it’s not a big mask but just a
small tube. He still messes with it but
he doesn’t seem extremely irritated anymore.
Today his CRP was up a little so he was given a small dose of
antibiotics. It’s at 1.3 CRP but after
the antibiotic it went back down to 1.0.
He is having a problem making platelets.
The doctors believe this is because of bone marrow suppression that is
caused by having back to back infections and being on antibiotics for a long
time. They treat this by giving him a
transfusion. If they didn’t give a
transfusion he would be at greater risks for bleeding. Praise God he has had no bleeding in his
brain whatsoever. He also has one
swollen lung. This is normal for Chronic
Lung Disease babies and it is improving with the CPAP. He is actually doing very well and making a
lot of progress. We are so blessed.
Today since his oxygen levels were stable while we were there they decided
to allow me to hold him outside the incubator.
This was the first time that I had actually cuddled him in my arms. It was very amazing. I was so very happy to be able to cradle
him. He even opened his eyes and stared
at me for a while during the cuddle time.
I gave him a few kisses on his little head. These were his very first mommy kisses. What a special moment that I will always
remember. I have been looking forward to
holding him. Although it is amazing a
perfect it’s also a little scary. He is
still so tiny and seems to me to be fragile.
It’s like he is my perfect and amazing baby but I once again have brand
new mommy syndrome where I feel like I have no idea what I am doing or what I
am allowed to do. LOL. I remember feeling like that with Jason but it’s
a little different with Jordan because he is so much smaller. Hopefully on Friday we will be able to start
kangaroo care. This is skin to skin contact. It is beneficial because it maintains body
temperatures but it also allows him to reconnect with me and the sound of my
heartbeat. It allows us to basically
bond again after being separated so abruptly.
Most mommies get to cuddle their newborns right away. We had to wait until he was almost 11 weeks
old to cuddle ours. Let me tell you, it
was worth the wait! He is absolutely
perfect in every way!!
Lord thank you for the three wonderful guys I have in my life. I have an awesome husband that loves me for
being me. He treats me like I am
beautiful and supports me in ways that only a soul mate can. I am honored to share this journey with such
a loving man. I praise you for bringing
Jason into our lives two and a half years ago.
This very handsome and energetic little boy is a huge reason for the joy
and laughter in our home. He brightens
our day, makes us smile, and loves us unconditionally. We are beyond blessed to be his parents. I praise you for the miracle that you have
given us in Jordan. This little body
against all odds survived his early birth and is thriving. He is fighting daily to overcome the issues
that surround his prematurity. You are
working in his life daily and are allowing us to watch your work first
hand. You have timed out the many
moments that we share to be perfect and complete. You do miracles in his body daily. We are beyond blessed to be his parents. I ask that you would continue to watch over
my family. I pray that you would give
Jacob guidance and purpose as he thinks about his schooling and his
career. Show him the paths you want him
to take and lead our family behind him.
I pray for Jason. That you would
continue to give him the energy that makes his life full and exciting. I ask that you would help him to learn the
boundaries of life at our teaching. Help
us to teach him honor, respect, and most importantly, your love. I pray for Jordan. I ask that you would continue to allow
progress to be seen. I specifically ask
that his breathing would stabilize and that his body would resume natural
production of platelets. Give him
strength to fight each and every battle.
I ask that you would allow Jordan to outgrow every effect of his severe
prematurity and allow him to lead a normal and healthy lifestyle. Allow him to be a testimony of your power and
grace. Lord thank you for your
blessings. Guide us along this path and
allow us to lean on you in our moments of weakness. Give us strength, patience, and rest. Lord please be with the plans for our
move. Orchestrate everything to be
perfectly and smoothly and send us to a place where we can be used by you. We thank you for giving us life and showing
us what the meaning of love really is.
In your name, Amen.
Friday, August 17, 2012
10 weeks old!! 8-17-12
Jordan is ten weeks old today! How blessed we are to have this sweet baby
boy in our lives! It’s hard to believe
that 70 days ago I was in recovery just hoping and praying that my baby boy
would pull through. How awesome that
against all odds, Jordan is growing, developing, and staying strong. This week has been a good week for
Jordan. The doctors are working on his
respiratory system right now and this is the biggest hurdle that Jordan needs
to overcome in his development. Earlier
in the week he had a few issues going on.
He had fluid around his liver and an issue with constipation that made
his intestines expand. Both of these
issues were pushing up on his lungs causing difficulty with deep
breathing. They had wanted to take him
off of the ventilator earlier but based on these issues they were unable
to.
Now all of the issues are gone and he is back to full feedings. The goal is to avoid him ever having to go
back on the ventilator once they take him off.
Based on this, they have decided to take him off the ventilator on
Monday. We are praying that there would
be no obstacles that come up this weekend that would delay extubation. We are really excited for this. Once he switches to CPAP and he is stable, we
get to hold him. Like actually hold
him. Like cuddle him in our arms and
give him smooches. I am beyond excited
for this moment. It is definitely hard
that baby boy is 10 weeks old and has not had any mommy cuddles and smooches
yet. But then again, he wouldn’t be
getting any if he was still in my belly so I guess it’s an okay
compromise. We do get to look at him and
watch the miracles happen in his life.
Jordan had an eye exam yesterday and it determined that he does have mild
ROP which is Retinopathy of prematurity.
It is a common ailment to premature babies because the retina is not
fully developed when the baby is born and then it can develop too quickly or
abnormally after the baby is born. There
are different stages of ROP and most premature babies have at least a mild
case. Jordan is no different and does
have a mild case. It is not serious
enough for him to need laser eye surgery at this time and Is very possible that
it will correct itself as he continues to develop meaning he may never need
treatment for this issue. He may need
glasses in the future but for now this is not something that is going to delay
him. They will continue to check his
eyes regularly until they are completely developed at about 37 weeks
gestation. He is currently 33 weeks
gestation. How awesome is it that our
bodies were created so perfectly that they can heal themselves and repair
themselves with new cells and new tissues.
God is so good. Jordan also
weighs 2.6lbs now. He is getting SO
big!! He also looks like a regular baby
now! LOL
It has been a little rough of a week for Jason and me. We both have a cold. I think Jason just had something mild. He didn’t seem to show many symptoms. I feel miserable though. It is not fun being sick. Today when we visited Jordan I stayed far
away from his incubator. As much as I
want to cuddle him and touch him it is not worth sharing my cold. Also because of my cold I am going to stay
home tomorrow and not visit him like I normally do on Saturdays. Gosh it is tough being a mommy sometimes! :D
I just pray that I will get healthy fast because a week from now I could be
cuddling my little boy in my arms!!
YAY!!!
Lord I want to thank you for the blessings you have placed in our
lives. You deserve the full and complete
credit. I am not strong; Jacob is not
strong. YOU are strong. You provide our strength. We give you all the glory for the miracles
that you work on a daily basis in Jordan’s life. He is one of the smallest and youngest babies
to ever survive birth. What a great
testimony to your power. I pray that you
would allow Jordan to live a full and healthy life and allow us to reach many
people with his story. Help us to be not
afraid to speak about the miracle that you have given us. I ask that you would continue to strengthen
Jordan and help him to grow. Continue to
knit his body together in perfect harmony.
We ask that you would protect Jordan from any bacteria or viruses. Put up a shield around him and do not allow
anything in that would delay extubation any farther. I also pray that you would allow for a smooth
transition. Help Jordan to stabilize and
excel at breathing on his own. Plan the
timing perfect so that we may hold him and cuddle him in our arms. We know you have the most perfect moment
planned for us. Lord please remove this
cold from our house. Allow us to regain
health and strength so that we may be the backbone of this mission. You are the heart. Lord we ask that you would be with the
process now for our move. Allow the
paperwork to be processed smoothly so that we may work on setting up our new
home and our new life. Send us to the
perfect location where we can do the most for your purpose. We ask all these things in your name, Amen.
Sunday, August 12, 2012
65 days old!! 8-12-12
Jordan is 65 days old today! What a crazy journey this has been. Crazy and yet so rewarding at the same
time. God has blessed us beyond measure
with our two beautiful baby boys! The
last two days have been filled with improvements for Jordan. His CRP level is continuing to go down and
his intestines are beginning to shrink back to normal size. His breathing is once again very strong and
they have him on low support settings.
His CRP this morning was 0.7. It
was funny because as Jacob was talking to the translator he was like, “You mean
1.7?” She assured him that she meant 0.7 and we were very pleased to hear how
low it is. This is the lowest it has
been for weeks. Once it reaches 0.3 it
is considered normal again. Jordan is
not currently on the antibiotics or the fungal medication because all the tests
came back negative for bacteria or fungus infections. It is awesome to see that even without any
medication, the inflammation is going away! Hooray!! So thankful that baby boy is pulling out of
the woods with these infections. Praying
hard that God would protect his body from future infections and growth and
would strengthen his immune system to fight off any predators. Dr. also said that once again, they would
like to take him off of the ventilator this week. We are praying that there will be no more
obstacles that cross his path that prevent this major step from occurring. Once he is stable on CPAP, we should be able
to start kangaroo care. I cannot wait to
snuggle my little boy against my body and give him real smooches. It is hard to think about how he is already
two months old and he has never gotten a real kiss from his mommy and
daddy. We know we must be patient. Afterall, if he was still in my womb, we
would not be able to kiss him there either.
Instead, we get a front row seat at watching the miracles that God does
in his life. What an awesome
testimony. God’s creation is beyond
amazing.
We went to church this morning and then spend the afternoon and evening
being lazy. We managed to take Lucy to
the dog park and let her run around with Jason and the other doggies for a
while. She needed a nice play time. Sometimes I feel really bad that she spends
so much time in the kennel these days but we are too attached to give her
up. We try to make up for it by playing
with her extra-long in the evening.
I was contacted today by a young lady from our base whose daughter was just
born prematurely (34 weeks gestation). I
ask that you would pray for their family and for peace for them. Their baby is doing well. I pray that God would allow me to be a
comforter and encourager to them and to support them as we know how they are
feeling living the NICU life. It is not
a fun thing to go through but our perfect babies are worth every moment.
One song has stuck in my head this evening.
I don’t know where it came from it just popped up. It means a lot to me and explains my
wishes. “Lord prepare me, To be a sanctuary. Pure and holy. Tried and true. With thanksgiving. Ill be a living, sanctuary for you.” I pray that God would prepare my heart to be
sanctuary that he can dwell in and work through for his purposes.
Lord I thank for this day that you have given us. I thank you for the warmth and sunshine that
you have designed. I also thank you for
not making it unbearably humid today. I
think you for the many blessings that you have given our family. I pray that you would strengthen Jordan and
put your loving hands on his body. Give
him immunity and allow him to finish healing from the issues that he has been
dealing with the past few weeks. You
know his needs lord and you are orchestrating his health. I ask that you would not allow any more
obstacles to cross our path that will deter him from being taken off life
support this week. Allow the transition
to go smoothly and perfectly. Allow
Jordan to take strong deep breaths and to be able to stabilize his oxygen on
his own. I pray that you would remove
the cloudiness in his eyes so that the doctors might be able to see and plan
for any treatments needed. Give him
perfect and wonderful vision. I also
want to pray for the family that I have met.
I pray that you watch over their baby girl and give them peace and
comfort. Help me to be a supporter where
I have gained experience. Lord be with
Jacob and me. Use our voices and our
actions to plant seeds into the lives of many.
Give us the words to say. Here we
are lord. Send us. Use us.
Work through us. Guide us. Lord I ask that you would organize our move
to the perfect location of your choosing.
I ask that you would set everything up and allow us to not be stressed
or overwhelmed with the burden of moving.
Give us strength and safety.
Allow us to lean on you moment by moment and day by day. We love you lord. In your holy name, Amen.
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