Jordan is THREE months old tomorrow! Oh my goodness. I can’t believe how far he has come. It has been such a journey and such a
blessing to spend this time with our little miracle boy! What a mighty God we serve. Jordan now weighs about 2lbs 12 oz. He has been having a few issues. His weight seems to be fluctuating. At first he wasn’t gaining weight. The doctors explained that they though he was
using up too many calories for breathing that he wasn’t putting on the weight
like he should. So they raised the
support level on his CPAP so that breathing would be easy for him. He started showing weight gain again after
that but today he lost about an ounce.
The doctor said not to worry about it though. Much easier said than done
of course. It is a good think that Jacob
and I have been giving all of our worries to God because I think we might be
crazy by now if we didn’t. Jordan needs
to gain weight steadily so that his lungs can heal. The goal is to have him off of CPAP and
breathing on his own by about 40-42 weeks gestation. So about 4-5 ish weeks. He needs to gain. Grow baby boy!!
Jordan’s eyes are one of the main concerns right now. They are checking his eyes twice per week for
ROP. His left eye seems to be developing
almost normally. He has ROP in his left
eye but it is not progressing at all and is stable at a very mild level. His right eye has been diagnosed as stage 3
mild ROP. Basically there are extra
blood vessels growing in his eye that aren’t supposed to be there. This is normal for premature babies because
their bodies try to develop quickly outside the womb. Right now he does not need surgery or photo
therapy treatment but it is a possibility for his future. We are praying that the progression of the
ROP would stop and stabilize so that Jordan can have full sight. We also pray for the doctor’s wisdom to be
able to make the decisions necessary at the correct time.
Jordan may have another infection but right now we are unsure. His CRP was 1.7 today after they stopped the
antibiotics yesterday. This is not extremely
high but it shows that his body is fighting something. It could be just irritation. The doctors will observe and take cultures to
watch this. The good news is with his
platelets. Today the number was 6.8. Yesterday it was 3.2. This is great news because with such a high
jump in numbers, it means his body is now making platelets regularly
again. Hooray!! We were getting worried there for a bit with
those daily transfusions he was getting.
Jordan and I cuddled for almost two hours today. He is such a sweetheart and he snoozed pretty
much the whole time. He snores kinda…haha. It’s SO adorable!! He looks a lot like his daddy when he
sleeps! He kept kicking me and wiggling
around to get comfy but once he found his spot he was good to go! His oxygen
saturation was 99% for a lot of the time we were cuddling he was just very
content! And so was I! I love his cuddles.
You know, part of me is still really afraid to handle him because he is
so fragile and tiny…but these cuddles have been a huge blessing. We finally feel like we can do something to
contribute to his care…..we can love on him! :D
We were supposed to have a meeting today to discuss Jordan’s transfer and
make decisions about his flight but it was cancelled. The NICU had a brand new baby born today and
the doctors needed to focus on giving that baby the best care possible. We were there doing kangaroo care when they
brought the baby in. He/She was HUGE…haha…well
like maybe 4lbs….but that seems HUGE to me right now! It was great to see all those doctors working
hard and taking every precaution to give this baby the best care! I pray that baby is very healthy.
I have been thinking a lot about Jordan coming home and I am so excited and
so nervous all at the same time. Mind
you we still have at least two more months before that will happen but we want
him to be with us! It’s really a strange
thing to have your baby but not have your baby. It is really frightening when his heart rate
slows down or his saturation gets low. I
am going to be really nervous to take him home!
It is hard to think that I would be 36 weeks pregnant right now if my
body had agreed with pregnancy. I am so
thankful for the time we have had with Jordan though. It has been a blessing to watch God’s
creation on the outside. I find it
amazing to see his power! I have grown a
lot through this experience and I know that God is using me for great
things.
Jason is doing well. He is such a
goofball. We just love him to
pieces. He makes us laugh so much! He is starting to get more defiant though…hmmm
I wonder where he got that from…..maybe his mother…hah! He will stare directly into my eyes with that
ornery smile as I tell him not to do something and he will do it anyway. Such a two year old!! Today on our way home he told me all about
his day! It was so great! I love having conversations with this little boy! He
is so smart and so big. I love that he
tells me “Tanks mamma” for everything! It just melts my heart! He is doing so
good with potty training. Step one is
accomplished. When we put him on the
potty and tell him to pee he does it! Wooohoooo!!! He gets so excited too. And we of course throw a party in the
bathroom. Now we need to work on step
two where he will tell us he needs to go rather than just going in his diaper
if we forget to take him or don’t ask him soon enough. Any potty training tips you wanna share?
We have been doing a lot to prepare for moving. Lots of organizing, researching, and dreaming
going on here! We have a lot to consider and think about. We want to make sure we have a plan set up so
that things can go smoothly. Jacob and I
will have to fly separately. I will fly
on the medical transport with Jordan and then Jacob will fly on a commercial
flight with Jason and Lucy. Lucy cannot
fly on the medical transport so that’s why we had to do separate flights. One of the guys working on our paperwork told
Jacob that it might just be easier to get rid of the dog…hah…rude! Of course
Jacob told him that was not an option.
Lucy is part of our family too.
There is no way we are moving without her! Luckily its just one straight through flight
right to Seattle! Pray for Jacob ! LOL
Jacob and I were reading in our devotions today about how God uses the
trials in our lives to refine us into Gold.
HE has great plans for our lives and He is molding us and shaping us how
He wants us for His perfect will. This
journey is not meant to bring us harm and heartache but to prepare us for our
purpose. God is using us and we are
growing. We want to be big green trees
with lots of great fruit! God also has this desire for us and will prepare us. What a mighty God we serve.
Lord I pray that you would continue to guide our family. You have made it very clear as to the path
you would like us to follow with this journey.
You have guided us each step and we trust that you will continue to
guide and lead us to where you want us.
I praise your name for my two beautiful boys. Lord you know the needs of Jordan right now
and I pray that you would fulfill those needs and breathe health and strength
into his body. Perform your miracles and
heal his eyes. Allow his body to grow
and thrive. Create in him a pure heart to serve you and guide others to
you. I pray that you would be with Jason
and his potty training. Allow him to
start taking control and make that transition.
I praise you that he is doing so well with it right now. Give us the patience to keep plugging away
and cheering him on toward this goal.
Lord I ask that you would be with our move and the decisions that we
have to make. Allow us to make wise
decisions that will benefit our family.
Help us to allow you to lead.
Show us where you want us to live, serve, and grow. Lord I pray for Jacob and that you would give
him the skills he needs to lead our family.
He is the leader of our home and I pray that you would help him to seek
after your direction each step of the way.
I thank you for making him into the husband and father that he is. Teach us and help us to grow in you
together. Thank you for your blessings
and the beauties of your creation. We
love you lord. Amen
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