Well so far we have had quite the adventure in America. I have now rented my first car, set up our hotel room as "home", and have even started getting used to driving on the right side of the road. We have been working on changing our schedules and just getting settled into life here in Washington. On Wednesday I picked up Jacob and Jason and Lucy from the airport. It was great to see them! Jacob says that both Jason and Lucy did excellent on the flight. I knew my kids were awesome! Everyone was very tired though so I took them straight to our hotel room so they could nap. If you know how hard my husband is to wake up then you know that I regretted that decision later. He just would not get out of bed...I finally kicked him out at about 5pm local time. Then we headed out to the hospital so that Jason could meet his little brother in person for the first time! What a blessing! Jason just adored Jordan and he loved meeting him. He asked if he could touch his head and give him hugs and kisses. He even helped Jacob hold him. It was precious to watch my two little boys mingle. I am looking forward to when they can play together. My boys are the best! Im serious! ;)
So we are realizing a lot of different changes from America to Japan. I mean we always knew about these changes but its different when you are living them. First off, not everyone in America are as friendly as they are in Japan. That makes me a little sad. We really gotta work on that. Especially as Christians. We should be spreading love. Also, I have seen quite a few homeless people so far. I know this is something that happens in Japan also but you don't really see it where we were. The portion sizes here are HUGE!! Jacob and I were shocked when we went to Olive Garden tonight. We had to get to-go boxes. It was super yummy though. When we finished our sodas and they wanted to bring us a second we were like what?! LOL Some of the best changes include us being able to understand what is going on anywhere we go because we speak the language. We could have done better about learning Japanese though.
One of the best changes is that I get to see my little man so often. He is 10 minutes away and they are open for visitation 24/7. This means that if I want to see him in the middle of the night then I can get up and go. They don't recommend that you sleep there...but you can...haha. I love being able to cuddle with him more. All of the nurses so far have been amazed by the treatment and care that he has gotten. Yes there are parts of his care that are different from Japan to America but look at how much he has accomplished. He is continuing to amaze others with his success.
A couple of things going on with Jordan. He is doing well for the most part. His respiratory condition is pretty much the same. He is just on a low level of oxygen. They will try to wean him off of it eventually but he still needs it. One of his biggest things that he has been working on is his feedings. He needs to be able to take all of his feedings by mouth. I have been practicing a chin support technique that allows him to get a better suction on the bottle. Today he drank all of his feedings by mouth. He is still having some episodes with his feedings though. Occasionally his heart rate will drop if he gets tired. When that happens we just take a break and then move on when he is better. From what I understand, this is just something he has to grow out of. He will also need to have his hernia surgery before discharge. It has not been scheduled yet and I don't have a tentative discharge date or anything. We are still just waiting to see what the future holds. His head ultrasound came back normal and all of his labs came back normal. They are tracking his thyroid. One of his thyroid hormone levels is a little high. He may or may not need treatment for that. As of now its not high enough.
Today I spoke with Jordan's eye doctor. Jordan has a partially detached retina in one eye. They call it a 4A detachment. It is located in a spot that would affect his peripheral vision. The eye doctor is working with other specialists to decide the best path of treatment. This is the biggest prayer request right now. If they decide to do treatment, he will need to be sent to Michigan for the eye surgery. When that will happen or if it will happen is still undecided. Of course this was not in our plans at all but we do want the best of the best doctors working on him and those doctors are in Michigan. We should know more as the week progresses.
Saturday we get to go look at our housing listings. We are so excited to become home owners!! Jacob signed in to work today. He is really excited about working at a heavy's base. He thinks that he will be able to get some of his schooling done while we are here. He is really looking forward to having more available time for that. I am looking forward to having more time together as well. I am so ready to bring my sweet boy home. I know that it is all in God's timing. These delays could just mean that Jordan needs to touch other lives for Christ. Lord I just ask that you give us the strength to keep fighting every day for Jordan's best interests. Help us to be observant and committed. We ask that you would protect him, heal him, and use him. Help us to be a light for your word. Amen.
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